Tag Archive for: Alopecia Universalis

Overcoming Alopecia Universalis

Guest Will Siskey, co-founder of the Sparrow Clinic, joins hosts Nataliia Sanzo and Kimberly Vaughn on this episode of the Thyroid Hair Loss Connection podcast. Listen to full episode here!

Will was diagnosed with Alopecia Areata at the young age of 16. His health challenge quickly progressed to Alopecia Universalis causing total hair loss all over his body.

Will writes about his journey to health on his clinic’s website: “It was out of desperation that we sought more natural treatments as traditional options had gotten us nothing more than a long list of side effects. We changed my diet among other lifestyle changes and sure enough a few years later I had about 85% recovery. Then a new challenge occurred, a gut parasite. We sought and learned more. Leading us to stem cell therapy using your own cells, tricking your cells to act younger with things like NAD+, immunomodulators, and so much more. So here I am 10 years later with a full head of hair experts said was impossible. All because the Lord, His design of our bodies, and the power of a determined mother.”

THLC asked Will to share what worked for him. This is his personal holistic, clean diet that supports his auto-immune condition plus suggestions for a simple, slightly less restrictive diet to improve health.

Will’s diet first started by eliminating the following:

  • Gluten
  • Dairy
  • Soy
  • Processed Foods
  • Artificial Ingredients
  • Food Substitutes
  • Peanuts
  • Artificial Colorings
  • Processed Salt

As his auto-immune condition improved, his diet continued to evolve, and Will shares the following with his diet today:

As for produce: organic–biodynamic even when available.

  • Fermented Foods
  • Organ meats
  • All of the ones listed above except I do eat raw 100% grass fed organic A2A2 Dairy on occasion now.
  • No vegetarian fed organic or non-organic chicken. Must be eating worms and insects.
  • No seed & nut oils: canola, sunflower, safflower, rapeseed, etc.
  • Wide array of colorful vegetables. Certain vegetables like spinach, kale, brussels sprouts, collard greens, etc. can contain some anti-nutrient components, making it essential to cook them properly.
  • Bone broth &/or bone marrow
  • Wild foods when available
  • Cooking oils: I use tallow, lard, coconut oil, avocado oil, or olive oil (the most unrefined and most natural the better.) Certain olive oils and processes can distort the omega profiles rendering them borderline toxic to your cells, while many others are “cut” or mixed with cheap seed oils like canola. This is also true even for organic corn and soy fed chickens.

Foods to promote healthy hair

Simple Ways to improve your diet & lifestyle

Without going too restrictive

  • Increase veggie & fruit intake if it is not a staple part of your diet. Everything should be organic but if not then I would take ION before eating for sure. There are only a select few foods that are GMO, so if you do not eat organic than make sure they are non-gmo. Corn is a great example. A list can be found online.
  • Beef, Lamb, Bison, Elk – Eat as wild and closest to nature intended as possible. For beef that is grass fed, preferably organic, no hormones, no antibiotics (unless necessary), etc.
  • Fish & shellfish – wild caught never farm raised. Larger fish tend to have higher levels of metals in them like swordfish and tuna. Don’t have to be avoided but something I wouldn’t eat a ton of.
  • Chicken & Eggs – Find a farm that grows them organically and not vegetarian feed which is often corn and grain etc. This still distorts the chicken’s fat profile to where it is almost toxic to us. The chickens may eat some grain but mostly worms and insects. Typically, one of the hardest items to find.
  • Oils – Use an organic olive oil or properly raised animal fat. A good olive oil source is Apollo Olive Oil in California. Avocado oil and coconut oil are also options.
  • Sugars – no artificial sugars or sweetners, no high fructose corn syrup. Best options are organic cane sugar, coconut sugar, or something minimally processed. Raw honey, maple syrup, and molasses are also other options. Organic stevia is okay too, but I wouldn’t overdo stevia.
  • Salt – use a sea salt. Some are even tested for micro plastics. A good brand I use is Redmond’s Real Salt.
  • Grains – organic sprouted ancient grains. Sourdough is best for any baked goods because it limits the gluten content through the fermentation process and increases nutrients.
  • Legumes – organic, soaked, and sprouted.
  • Nuts – organic – sprouted if you’re sensitive.
  • Dairy – Same standards for the beef above but also unpasteurized and raw dairy. If you’re getting cheese you want to make sure the cheese isn’t stored at too high a temperature. Finding a good farm is the best way to do this.
  • Limit processed and boxed foods.

Nataliia and Kimberly want to thank Will for his candid discussion about his Alopecia diagnosis and for providing the diet he follows. You can find out more about Will and the Sparrow Clinic by emailing him: Will@thesparrowclinic.com

Hair Loss Clinical Studies & Trials

hair loss clinical studies & trials

Alopecia affects millions of people around the world and does not discriminate against age, gender, and ethnicity. Androgenic alopecia, male or female patterned baldness, is one of the most common types of alopecia; however, alopecia areata, totalis, and universalis also affect a large part of the population. Because so many people worldwide are affected, there are continuous on-going studies to find new ways to treat the various types of alopecia.

Here are two promising clinical trials to keep your eye on:

In the Alopecia Universalis (AU) and Alopecia Totalis (AT) study sponsored by Aclaris Therapeutics, Inc. is assessing the safety, patient tolerance, and pharmacological properties of a new topical solution for patients diagnosed with alopecia universalis or alopecia totalis. In this randomized, double-blind trial, subjects are to apply a topical solution or a placebo to their scalp twice-daily for a total of 28 days. After 28 days, hair growth will be evaluated in addition to medication concentration found in the blood and skin. This study is currently in phase 2 of its clinical trial.

The Intrepid Therapeutics, Inc. study Comparator Solution and Vehicle Solution in Males With Androgenetic Alopecia the clinical trial enrolled 95 male participants with mild to moderate androgenic alopecia in the temporal and frontal hair region to evaluate the effectiveness of a new topical solution. In this randomized, double-blind trial, subjects will be evaluated for efficiency and safety of a new topical solution to be applied twice daily for a total of 26 weeks.

Early results seem promising and demonstrate slightly more effectiveness than minoxidil. And because the medication mechanism is different, it is possible this new solution may be used in conjunction with minoxidil. Updated results of this phase 2 trail will be available June/July of 2018.

There is also a new, investigative clinical trial in the Nashville area focused on an oral treatment for alopecia. Learn about that trial in this post. Act fast as the trial is only available for a small group.

Contact us today at 615.662.8722 for the latest hair loss solutions.

Nashville Alopecia Clinical Trial Opportunity–Oral Investigational Drug

nashville alopecia clinical trial opportunity-oral investigational drug

Alopecia affects millions of people around the world and does not discriminate against age, gender, and ethnicity. Androgenic alopecia, male or female patterned baldness, is one of the most common types of alopecia; however, alopecia areata, totalis, and universalis also affect a large part of the population. In a recent post in anticipation of other clinical trials and studies, we pointed out these and a few hair loss trials. Now, we have one closer to home.
In collaboration with the Tennessee Clinical Research Center, we are supporting efforts to increase awareness of a local clinical research study currently looking for adults with alopecia areata (bald patches on the scalp), or with alopecia universalis–which can result in total loss of all scalp and body hair including eyebrows, eyelashes, and intranasal hair, or alopecia totalis (total scalp hair loss) to participate in a study of an oral investigational drug. Under the direction of Dr. Michael Gold, the trial focuses on oral medication, which have been shown to be more effective than topical treatments. Interested?

YOU MAY QUALIFY TO PARTICIPATE IF YOU:

  • Are at least 18 years old
  • Have areas of hair loss on the scalp due to Alopecia Areata (AA), Alopecia Universalis (AU) or Alopecia Totalis (AT)
  • Have been experiencing the current episode of AA, AU, or AT for at least 6 months and no more than 7 years
  • Have 30-100% total scalp hair loss
  • Are willing to stop any current prohibited treatments for your scalp hair loss
  • Are willing to attend regular study visits involving lab tests, electrocardiograms, questionnaires, and other study procedures for the duration of the study

HPIHair is not an active participate nor conducting the trials. We support and believe in the science the trials employ. For more information, call April at the Tennessee Clinical Research Center 615.383.9660 ext. 175 or email research@tnclinicalresearch.com.
The Tennessee Clinical Research Center can be found at 2000 Richard Jones Road, Suite 223 Nashville, TN 37215 and online at www.tnclinicalresearch.com.
Alopecia Areata Trial Flyer